Dazed and confused

Diagnosed: May 25, 2012 This Video: March 15, 2024

Living with my Parkinson’s

My life with Parkinson’s, is not just My life with Parkinson’s!

My life with Parkinson’s includes every person I care for and everyone that cares about me.

My life with Parkinson’s makes for a life of miscommunication, a life of misunderstanding?

A life with Parkinson’s is a life spent chasing those “ON” times.and hopefully exploiting them together with the people you care about.

Hopefully not wasting those moments by being alone .

My life with Parkinson’s includes a disappointment in the unexpected change of direction my future, our future has had to endure.

My Life with Parkinson’s has changed my reactions to those people and in their reactions with me!

My life with Parkinson’s has me concerned about the parts of me that are no longer there. The loss of freedom that I must now demand be replaced from others. Yet in asking others to help fill that void. They themselves are creating a void in their lives, altering their lives,

My life with Parkinson’s is at times in conflict with their life with my Parkinson’s!

It makes me question, is their response to what I have lost creating a bigger loss in their life than mine, and how can I stop that from happening?

Brain fog , mobility issues, speech, etal, places stress not just on me, but them.

My life, their life. Has been changed and will continue to be,

It is a murky future we enter into.

One I think we can handle only by the strength of the memories of our past.

Hopefully, they feel the same!

But there are those in my life that the past, is not as established . Will they want to be a part of that future?

The life with My Parkinson’s seems to be on shakey ground.

It seems as if we are entering an abyss.

Yet we enter at different speeds.

Making this journey harder to comprehend.

We are still holding hands, demonstrating hopefully our commitment to each other and not just trying to hang on to what we had.

My life with Parkinson’s, their life with My Parkinson’s , our lives with My Parkinson’s has no simple answer to what we are encountering.

It seems We are two individuals dealing with My Parkinson’s differently because in reality My Parkinson’s affects us both differently.

The question being asked about My Parkinson’s isn’t, “ Do you want to walk a mile in my shoes?”

The real question that should be asked is “ Would I want to walk a mile in theirs?”

I HATE THIS DISEASE !!

However all I can do is try and be an example to those in My Parkinson’s Life!

How do I do that?

By Having Fun and being a Warrior!

That is the least that I can do for those involved in My Parkinson’s life.