Blog Stories – My Dealings With Parkinson’s
I am Goldilocks?
Let’s see it’s about 10 PM I’ve just announced to my care giver I’m going to bed. I’m tired and need sleep. What could possibly interfere with this process? Why can’t I sleep? I in no particular order. Let’s go through the checklist. When do I go to bed? Where do I sleep on the…
The Massage room
Diary of a mad man? Or just another day with Parkinson’s? The Massage Room I use to jokingly say that My goal in life was to be the world’s oldest living porn star! My younger self thinking about how exciting it must be, getting naked in front of strangers. Boy has Parkinson’s changed my way…
Sunrise to Sunset
My meaning to life Every morning the sun comes up. I feel honoured to be able to have a wonderful place to witness the beauty of each new day. However with each new day comes the barricades and roadblocks that will be put in front of me to challenge how I will get to be…
My Parkinson’s Team
I was asked a question the other day, “ Who makes up your Parkinson’s team?” Followed by “ How would I rank them?” The typical responses would be my caregiver, my MDS, My GP, pharmacist, family , friends . You know the typical responses. BUT as I have stated before I am not normal. Remembering…
Parkinson’s Concierge- Sleep
This is a video of fellow Parkies talking about their sleep issues. Some time around the the 14 minute mark I make an appearance. Hopefully listening will encourage you to speak up.
Merry Covid-mas
The world is going through a global Pandemic and as the year slowly limps to an end, it seems like time for a: Robertson Newsletter: Survivor Edition Can the year 2020 get any worse? The Moronavirus Ian, that Covidiot, as usual took everything he heard the wrong way. He has spent most of the year…
Putting the “U” in Parkinson’s
Understand that a Parkinson’s diagnosis means that somewhere in there, is an invisible vowel. That vowel is a U. Parkinson’s must not take so strong of a hold on you that it defines who you are. However, you can, you must, define the Parkinson’s in you. By doing so, you can put your own stamp…
Think, Talk, See, Do?
Think, See, Talk, Do Parkinson’s is described as a movement disorder. Hell even the specialist we see is called an MDS(Movement Disorder Specialist)! Yet there is more to this disease than just how it effects our movement. If all we do is focus on our movements, then we might actually be limiting the amount of…
The 4 P’s of a Parkinson’s workout
The 4 P’s of a Parkinson’s workout We , Parkies must have more impact and more involvement, not only in finding a cure but by being more in charge of our own day to day care. To often we let our doctors and therapists design a program for us with out any involvement from us.…
Self Pity, Parkinson’s and Me
I try to be a positive person. I find that the” Always look on the bright side of life” attitude rubs off on others and bounces back to me. In other words, the attitude that I expose to others, helps to form the attitude that they will then give back to me. Most days I…
Parkinsons - My Super Power 