Author Archives: Parkinson's My Super Power

I have read that silk sheets and silk Pajamas can make for easier movement when under the sheets. Don’t know if I want my family or friends to know this but I sleep in the buff. Does anyone else sleep in the buff and find that it makes for easier repositioning under the sheets. IContinue reading “Sleep freedom of movement?”

As I age and as my Parkinson’s progresses I have found that there are fours words that when put together in a sentence elicit two different emotions from me. I fear hearing them, before they are spoken. And yet once spoken to me bring me pure joy! What are those four words? “Grandpa, Let’s goContinue reading “Four Simple Words”

When we are diagnosed why are we concerned about being “Normal” or finding out a “New Normal” Excuse my language but” fuck” normal! Normal is all about being Average. Strive to better than that. Strive to be AB -normal. For “Life” can bring us so much more excitement and pleasure , when we work onContinue reading “Why worry about Normal”

Okay you just got diagnosed with Parkinson’s, you and your caregiver are looking for answers. Can a support group be of some help? My answer to this is YES and NO! Boy that’s gotta be helpful to you, right? Support groups can be very enjoyable and rewarding, and should definitely be considered as an importantContinue reading “Finding that right support group”

Just as Batman had Robin, every good Super hero had some kind of sidekick. That sidekick is every bit as important in the fight against evil as the actual Super Hero. So to must it be with those of us with Parkinson’s and our sidekick, that valuable person in our relationship,…. The Caregiver. Normally forContinue reading “Every Super Hero needs A Side Kick”

One of the things that can frustrate those of us with Parkinson’s is the constant replies from our spouse, “What did you say?” I will begrudgingly admit my voice is getting softer and she isn’t losing her hearing as I thought. Damn It!!!!! We have all heard that exercise will help to slow down theContinue reading “Why does my Parkinson’s make everybody Deaf?”

With my Parkinson’s diagnosis (2012) I feel somewhat distant in my attitude from others who have the disease. Most that I have met seem wary and somewhat afraid of what the future brings. I have tried to plan my future but in all actuality I had no better idea what was coming my way whenContinue reading “Faith and Attitude”

When you come to a fork in the road, take it. How can we understand the words “Quality of life” when the definition of quality means something different to us all ? My doctor kept telling me “This or that would improve my quality of life”. I asked him, “What he thought was bad aboutContinue reading “Quality of life?”

Update may 06/20 It has been three years since I wrote this and in my opinion the question still remains the same. Parkinson’s has not robbed me of who and what I am. Granted it has made things more challenging but I believe I am actually a better person because of it. So again IContinue reading “What comes first? The Chicken or the Egg?”

How does that old saying go? “ There is nothing to fear but fear itself.” To me living with Parkinson’s is not something to be fearful of, but something that I must respect if I want to live with it. Similar to living by a lake. Yes the water is capable of taking my lifeContinue reading “The Fear of Parkinson’s, is it fact or a Myth”